Colloque: Towards a Reform of Access to Health Information for Research Purposes in Quebec: Preliminary Reactions to Bill 19

Informations sur l'événement

Date

28 January 2022

Time

12:30 - 16:30

Location

Online

On December 3, 2021, the Quebec Minister of Health and Social Services tabled Bill 19, An Act respecting health and social services information and amending various legislative provisions. This bill intends to establish a specific legal regime for health information that would facilitate and accelerate access to this information for research purposes, while ensuring a high level of privacy protection for the patients who are the source of this information. The objective of this conference is twofold. First, to present Bill 19 to the scientific community and explain the main mechanisms that the bill would put in place to facilitate access to health information. Second, it is to seek input from researchers and clinicians whose practice will be affected by the bill, as well as from patients whose information may be used for research purposes.


Preliminary Program

12:30 p.m.: Introductory Remarks
Carole Jabet, Scientific Director, Fonds de recherche du Québec – Santé (FRQS)

12:40 p.m. to 2:10 p.m.
Panel 1 – Presentation of Bill 19
Moderator: Catherine Régis, Professor, Faculty of Law, University of Montreal and co-leader of the H-pod

Interventions:

  • Overview of Bill 19
    Pier Tremblay, Director of Data Governance, Ministère de la Santé et des Services sociaux
    Me Olivia Tremblay-Toussaint, Legal Strategy Advisor, Ministère de la Santé et des services sociaux
  • Privacy issues raised by PL19
    Pierre-Luc Déziel, Professor, Faculty of Law, Université Laval and co-head researcher of OBVIA’s Law, Cyberjustice and Cybersecurity axis
  • Consent models in PL19
    Jean-Frédéric Ménard, Professor, Faculty of Law, Université Sherbrooke

2:10 p.m.: Pause

2:15-3:00 p.m.
Panel 2 – The perspective of researchers

Moderator: Virginie Manus, Development and Coordination of OBVIA’s Public Policy Function Activities.

Panelists:

  • Anick Bérard, Full Professor, Faculté de pharmacie, Université de Montréal
  • Philippe Després, medical physicist, Department of Radiation Oncology, CHU de Québec – Université Laval and co-head researcher of OBVIA’s Sustainable Health axis
  • Jean-Francois Éthier, Professor, Service de médecine interne, Université de Sherbrooke, CIUSSS de l’Estrie – CHUS
  • Dr Antoine Groulx, Scientific Director, SSA Quebec Support Unit and professor in the Faculty of Medicine, Université Laval
  • Alexandre Le Bouthillier, Ph.D., Co-founder of Imagia

3:15-4:15 p.m.
Panel 3 – The perspective of patients

Moderator: Vincent Dumez, co-director of the Centre of Excellence on Patient and Public Partnership (CEPPP) at the University of Montreal

Panelists:

  • Cédric Baudinet, Project Manager, Investments and Health Promotion, Fondation cancer du sein du Québec
  • Sylvain Bédard, patient-partner
  • René Lortie, patient-partner
  • Guy Poulin, patient-partner
  • Eva Villalba, Excutive Director, Coalition Priorité Cancer au Québec
  • Raymond Vles, President, CCL Canada

4:15 – 4:30 pm: Conclusion and Closing Remarks
Cécile Petitgand, Data Access Advisor, Fonds de recherche du Québec – Santé (FRQS)


Partners


CONTINUING EDUCATION – CERTIFICATE OF ATTENDANCE

Participants who wish to obtain a certificate of attendance of this event can indicate it in the registration form. It will be sent by e-mail by the OBVIA in the days following the event. Each participant is then responsible for taking the necessary steps to have their attendance recognized as a continuing education activity by their educational institution, their employer or their professional order.

This event will be held in French only.


OBVIA member researchers participating in the event:

  • Pierre-Luc Déziel

    Professor, Faculty of Law

    Université Laval

  • Catherine Régis

    Professor, Faculty of Law, Canada Research Chair in Collaborative Culture in Health Law and Policy

    Université de Montréal

  • Philippe Després

    Professor in the Department of Physics, Engineering Physics and Optics. Faculty of Science and Engineering

    Université Laval

  • Jean-François Ethier

    Professor, Department of Medicine, Faculty of Medicine and Health Sciences, Scientific Co-Director of GRIIS

    Université de Sherbrooke

Recent Articles

Contact us

Suscribing Newsletter

Receive our latest news, upcoming events, news from our collaborators and more! (French version only avalaible)

The International Observatory on the Societal Impacts of AI and Digital Technology is made possible by the support of the Fonds de recherche du Québec.